{
  "legislationId": "119_HRES_1133",
  "lastUpdate": "2026-04-16T08:00:24.096Z",
  "history": [
    {
      "timestamp": "2026-04-16T08:00:24.096Z",
      "source_url": "https://www.congress.gov/119/bills/hres1133/BILLS-119hres1133ih.htm",
      "model": "gemini-3.1-pro-preview",
      "prompt_sent": "\nJesteś LEGISLATIVE SURGEON.\nTwoim zadaniem jest audyt i naprawa streszczenia (JSON) pod kątem zgodności z tekstem źródłowym (SOURCE).\nZASADA FUNDAMENTALNA: \"NO NEW INFORMATION\" (żadnych nowych informacji).\nStreszczenie może jedynie transformować informacje zawarte w SOURCE (skracać, tłumaczyć, sumować). Nie może generować nowych informacji, których nie ma w SOURCE.\n\nPROCEDURA WERYFIKACJI (wykonaj dla każdego zdania w JSON):\nZadaj sobie pytanie: \"Czy potrafię wskazać w SOURCE konkretny fragment, który potwierdza to stwierdzenie?\"\nJEŚLI ODPOWIEDŹ BRZMI \"TAK\":\nInformacja jest potwierdzona cytatem, synonimem lub wynikiem matematycznym z danych w tekście.\nDECYZJA: Zostaw bez zmian.\nJEŚLI ODPOWIEDŹ BRZMI \"NIE\":\nInformacji nie ma w tekście (jest to halucynacja, zewnętrzna wiedza modelu, nadinterpretacja lub niepotrzebna ekstrapolacja).\nDECYZJA: Usuń tę informację lub zmień ją tak, aby miała pokrycie w tekście.\nJEŚLI ODPOWIEDŹ BRZMI \"TO ZALEŻY\":\nTekst jest niejasny, a streszczenie \"zgaduje\" (np. podając konkretny przykład dla ogólnego terminu).\nDECYZJA: Bądź bezpieczny. Usuń zgadywanie. Użyj terminologii z tekstu.\n\nKATEGORIE RYZYKA (szczególna uwaga):\nDaty (start obowiązywania vs start finansowania).\nLiczby (konkretne kwoty muszą wynikać z tekstu).\nPodmioty (kto co robi).\nZakres (co ustawa obejmuje, a czego nie).\n\nINPUT:\n--- SOURCE_TEXT START ---\n[Congressional Bills 119th Congress] [From the U.S. Government Publishing Office] [H. Res. 1133 Introduced in House (IH)] <DOC> 119th CONGRESS 2d Session H. RES. 1133 Designating November 7 of each year as''Shwachman Diamond Syndrome Awareness Day''. _______________________________________________________________________ IN THE HOUSE OF REPRESENTATIVES March 24, 2026 Mr. Kean (for himself and Mr. Gottheimer) submitted the following resolution; which was referred to the Committee on Energy and Commerce _______________________________________________________________________ RESOLUTION Designating November 7 of each year as''Shwachman Diamond Syndrome Awareness Day''. Whereas Shwachman-Diamond syndrome (SDS) is a rare genetic disorder that primarily affects a diagnosed individual's bone marrow, pancreas, and skeleton; Whereas SDS is inherited in an autosomal recessive manner, meaning a person must inherit two faulty copies of the gene, one from each parent, for the disorder to develop; Whereas, typically, the parents of the affected individual do not show signs and symptoms of SDS; Whereas an estimated 2,000 Americans are living with SDS; Whereas this rare condition occurs in approximately 1 in 80,000 newborns; Whereas infants with SDS are born with the condition and develop symptoms usually by 4 to 6 months of age; Whereas individuals diagnosed with SDS often develop liver dysfunction, dental problems, developmental delays, and delayed puberty; Whereas one of the main characteristics of SDS is bone marrow dysfunction; Whereas bone marrow dysfunction leads to the production of too few white blood cells, which are essential for fighting infections, making individuals more prone to frequent or severe illnesses; Whereas, in addition to having too few white blood cells, individuals with SDS may also have low levels of red blood cells, which increases their risk of developing blood disorders such as acute myeloid leukemia; Whereas another hallmark of SDS is pancreatic insufficiency, in which the pancreas does not produce enough digestive enzymes. This often causes problems absorbing fats and nutrients, leading to chronic diarrhea, poor weight gain, and failure to thrive, especially during infancy and early childhood; Whereas skeletal abnormalities affecting the growth plates of bones are also common in individuals diagnosed with SDS, often leading to short stature and orthopedic problems with their hips and knees; Whereas, with modern treatment options and ongoing management, most children diagnosed with SDS lead normal lives, although continued medications and regular monitoring are usually required; Whereas, because the signs and symptoms of SDS are variable and can be mild in some affected individuals, the condition is underdiagnosed; Whereas diagnosis is based on a combination of clinical symptoms, blood tests, stool tests for digestive enzyme levels, and confirmation through genetic testing; Whereas treatment typically involves managing symptoms, such as using pancreatic enzyme replacement therapy, nutritional support, and medications that stimulate white blood cell production; Whereas there is no cure for SDS. Current treatment options only lessen symptoms and treat complications; Whereas SDS reduces life expectancy by more than 30 years and many patients die as infants, kids, or teens due to SDS-related complications; Whereas regular monitoring is essential to identify any progression to more serious bone marrow conditions; Whereas, while there is no cure for SDS, early diagnosis and multidisciplinary care can significantly improve the quality of life for diagnosed individuals; Whereas, as a result of its rare nature, SDS is not widely known. This has led to limited research and understanding of the disease; Whereas it is appropriate to improve public awareness and understanding of this rare genetic condition, encourage support for those individuals who have been afflicted by SDS, and promote more initiatives at the national, state, and local levels to enhance research into treating this disease; and Whereas November 7th, 2026, would be an appropriate date to designate ``Shwachman-Diamond Syndrome Awareness Day'': Now, therefore, be it Resolved, That the House of Representatives-- (1) Supports the designation of ``Shwachman Diamond Syndrom Awareness Day'' to increase awareness of this heritable rare genetic disorder and its impace on the residents of this nation, and to promote further research into effective treatments for this disease. (2) This act shall take effect immediately. <all>\n--- SOURCE_TEXT END ---\n\n--- FLAGGED_JSON START ---\n{\n  \"pl_ai_title\": \"Ustanowienie 7 listopada Dniem Świadomości Zespołu Shwachmana-Diamonda\",\n  \"pl_summary\": \"Rezolucja wprowadza coroczny dzień świadomości rzadkiej choroby genetycznej, aby pomóc w jej szybszym diagnozowaniu i wspierać badania nad nowymi lekami. Zmiana ta ma na celu poprawę jakości życia chorych oraz zwiększenie wiedzy społeczeństwa o objawach tej choroby.\",\n  \"pl_key_points\": [\n    \"Ustanowienie 7 listopada oficjalnym dniem edukacji o zespole Shwachmana-Diamonda (SDS).\",\n    \"Zwiększenie wysiłków na rzecz wczesnego wykrywania choroby u niemowląt i dzieci.\",\n    \"Promowanie badań naukowych nad skutecznymi metodami leczenia i poszukiwaniem lekarstwa.\",\n    \"Wsparcie dla rodzin i pacjentów zmagających się z problemami szpiku kostnego i trzustki.\"\n  ],\n  \"eng_ai_title\": \"Designating November 7 as Shwachman Diamond Syndrome Awareness Day\",\n  \"eng_summary\": \"This resolution establishes an annual day to raise awareness about a rare genetic disorder affecting bone marrow and the pancreas. It aims to improve early diagnosis and encourage funding for medical research to help affected families.\",\n  \"eng_key_points\": [\n    \"Designates November 7th as a national day to learn about Shwachman-Diamond Syndrome (SDS).\",\n    \"Encourages better public understanding of symptoms like bone marrow and digestive issues.\",\n    \"Promotes national and local initiatives to find effective treatments and a cure.\",\n    \"Highlights the importance of early diagnosis to improve the quality of life for children.\"\n  ],\n  \"de_ai_title\": \"Festlegung des 7. November als Shwachman-Diamond-Syndrom-Aufklärungstag\",\n  \"de_summary\": \"Diese Resolution führt einen jährlichen Gedenktag ein, um die Aufmerksamkeit auf eine seltene Erbkrankheit zu lenken, die Knochenmark und Bauchspeicheldrüse betrifft. Ziel ist es, die Früherkennung zu verbessern und die Forschung für bessere Behandlungsmethoden zu fördern.\",\n  \"de_key_points\": [\n    \"Einführung des 7. November als offizieller Tag zur Aufklärung über das Shwachman-Diamond-Syndrom (SDS).\",\n    \"Förderung der Forschung zur Entwicklung wirksamer Medikamente und Heilungsmethoden.\",\n    \"Sensibilisierung für die Symptome der Krankheit, um Fehldiagnosen zu vermeiden.\",\n    \"Unterstützung für betroffene Familien durch verstärkte nationale und lokale Initiativen.\"\n  ],\n  \"fr_ai_title\": \"Désignation du 7 novembre comme Journée de sensibilisation au syndrome de Shwachman-Diamond\",\n  \"fr_summary\": \"Cette résolution établit une journée annuelle pour sensibiliser à une maladie génétique rare touchant la moelle osseuse et le pancréas. Elle vise à favoriser un diagnostic précoce et à soutenir la recherche médicale pour aider les patients.\",\n  \"fr_key_points\": [\n    \"Désigne le 7 novembre comme journée officielle d'information sur le syndrome de Shwachman-Diamond (SDS).\",\n    \"Encourage la recherche scientifique pour trouver des traitements efficaces et un remède.\",\n    \"Vise à mieux faire connaître les symptômes pour réduire les erreurs de diagnostic.\",\n    \"Soutient les initiatives locales et nationales pour améliorer la vie des personnes atteintes.\"\n  ],\n  \"es_ai_title\": \"Designación del 7 de noviembre como Día de Concienciación sobre el Síndrome de Shwachman-Diamond\",\n  \"es_summary\": \"Esta resolución establece un día anual para aumentar el conocimiento sobre un trastorno genético raro que afecta la médula ósea y el páncreas. El objetivo es mejorar el diagnóstico temprano y fomentar la investigación de nuevos tratamientos.\",\n  \"es_key_points\": [\n    \"Establece el 7 de noviembre como el día oficial para educar sobre el Síndrome de Shwachman-Diamond (SDS).\",\n    \"Promueve la investigación científica para encontrar curas y mejores opciones de tratamiento.\",\n    \"Busca alertar sobre los síntomas en bebés para asegurar una atención médica rápida.\",\n    \"Apoya a las familias afectadas mediante una mayor visibilidad pública de la enfermedad.\"\n  ],\n  \"it_ai_title\": \"Istituzione del 7 novembre come Giornata della consapevolezza sulla sindrome di Shwachman-Diamond\",\n  \"it_summary\": \"Questa risoluzione fissa una giornata annuale per far conoscere una rara malattia genetica che colpisce il midollo osseo e il pancreas. L'obiettivo è facilitare la diagnosi precoce e stimolare la ricerca medica per migliorare la vita dei pazienti.\",\n  \"it_key_points\": [\n    \"Designa il 7 novembre come giornata dedicata all'informazione sulla sindrome di Shwachman-Diamond (SDS).\",\n    \"Incoraggia il finanziamento della ricerca per trovare cure efficaci contro questa patologia.\",\n    \"Mira a diffondere la conoscenza dei sintomi tra i cittadini e i medici.\",\n    \"Promuove iniziative a livello nazionale e locale per sostenere le persone affette.\"\n  ],\n  \"nl_ai_title\": \"Aanwijzing van 7 november als Bewustwordingsdag voor het Shwachman-Diamond Syndroom\",\n  \"nl_summary\": \"Deze resolutie stelt een jaarlijkse dag in om aandacht te vragen voor een zeldzame genetische aandoening die het beenmerg en de alvleesklier aantast. Het doel is om vroege diagnose te bevorderen en onderzoek naar behandelingen te stimuleren.\",\n  \"nl_key_points\": [\n    \"Roept 7 november uit tot officiële dag voor voorlichting over het Shwachman-Diamond Syndroom (SDS).\",\n    \"Bevordert wetenschappelijk onderzoek naar effectieve behandelingen en een medicijn.\",\n    \"Vergroot de publieke kennis over symptomen om onderdiagnose tegen te gaan.\",\n    \"Ondersteunt nationale en lokale initiatieven voor patiënten en hun families.\"\n  ],\n  \"pt_ai_title\": \"Designação de 7 de novembro como Dia de Consciencialização da Síndrome de Shwachman-Diamond\",\n  \"pt_summary\": \"Esta resolução estabelece um dia anual para sensibilizar a população para uma doença genética rara que afeta a medula óssea e o pâncreas. O objetivo é melhorar o diagnóstico precoce e incentivar a investigação de novos tratamentos.\",\n  \"pt_key_points\": [\n    \"Define o dia 7 de novembro como o dia oficial para informar sobre a Síndrome de Shwachman-Diamond (SDS).\",\n    \"Promove a investigação científica para encontrar tratamentos eficazes e uma cura.\",\n    \"Visa aumentar o conhecimento sobre os sintomas para evitar diagnósticos tardios.\",\n    \"Apoia iniciativas que melhorem a qualidade de vida dos doentes e das suas famílias.\"\n  ],\n  \"category\": [\n    \"Health\"\n  ]\n}\n--- FLAGGED_JSON END ---\n\nOUTPUT:\nWyłącznie naprawiony obiekt JSON zgodny ze strukturą:\n{\n  \"pl_ai_title\": \"...\", \"pl_summary\": \"...\", \"pl_key_points\": [...],\n  \"eng_ai_title\": \"...\", \"eng_summary\": \"...\", \"eng_key_points\": [...],\n  \"de_ai_title\": \"...\", \"de_summary\": \"...\", \"de_key_points\": [...],\n  \"fr_ai_title\": \"...\", \"fr_summary\": \"...\", \"fr_key_points\": [...],\n  \"es_ai_title\": \"...\", \"es_summary\": \"...\", \"es_key_points\": [...],\n  \"it_ai_title\": \"...\", \"it_summary\": \"...\", \"it_key_points\": [...],\n  \"nl_ai_title\": \"...\", \"nl_summary\": \"...\", \"nl_key_points\": [...],\n  \"pt_ai_title\": \"...\", \"pt_summary\": \"...\", \"pt_key_points\": [...],\n  \"category\": [\"...\"]\n}\n\n",
      "ai_response_raw": "{\n  \"pl_ai_title\": \"Ustanowienie 7 listopada Dniem Świadomości Zespołu Shwachmana-Diamonda\",\n  \"pl_summary\": \"Rezolucja wprowadza coroczny dzień świadomości rzadkiej choroby genetycznej. Zmiana ta ma na celu poprawę świadomości publicznej, wsparcie dla osób dotkniętych chorobą oraz promowanie inicjatyw na rzecz badań nad leczeniem tej choroby.\",\n  \"pl_key_points\": [\n    \"Ustanowienie 7 listopada Dniem Świadomości Zespołu Shwachmana-Diamonda (SDS).\",\n    \"Zwiększenie świadomości na temat tego rzadkiego dziedzicznego zaburzenia genetycznego.\",\n    \"Promowanie dalszych badań nad skutecznymi metodami leczenia tej choroby.\",\n    \"Wsparcie dla osób dotkniętych SDS oraz promowanie inicjatyw na szczeblu krajowym, stanowym i lokalnym.\"\n  ],\n  \"eng_ai_title\": \"Designating November 7 as Shwachman Diamond Syndrome Awareness Day\",\n  \"eng_summary\": \"This resolution establishes an annual day to raise awareness about a rare genetic disorder. It aims to improve public awareness, encourage support for affected individuals, and promote initiatives to enhance research into treating this disease.\",\n  \"eng_key_points\": [\n    \"Designates November 7th as Shwachman-Diamond Syndrome Awareness Day.\",\n    \"Increases awareness of this heritable rare genetic disorder and its impact.\",\n    \"Promotes further research into effective treatments for this disease.\",\n    \"Encourages support for individuals afflicted by SDS and promotes national, state, and local initiatives.\"\n  ],\n  \"de_ai_title\": \"Festlegung des 7. November als Shwachman-Diamond-Syndrom-Aufklärungstag\",\n  \"de_summary\": \"Diese Resolution führt einen jährlichen Gedenktag ein, um die Aufmerksamkeit auf eine seltene Erbkrankheit zu lenken. Ziel ist es, das öffentliche Bewusstsein zu verbessern, Betroffene zu unterstützen und Initiativen zur Erforschung der Behandlung zu fördern.\",\n  \"de_key_points\": [\n    \"Einführung des 7. November als Shwachman-Diamond-Syndrom-Aufklärungstag.\",\n    \"Sensibilisierung für diese seltene erbliche genetische Störung und ihre Auswirkungen.\",\n    \"Förderung weiterer Forschung zu wirksamen Behandlungen für diese Krankheit.\",\n    \"Unterstützung für von SDS betroffene Personen und Förderung nationaler, bundesstaatlicher und lokaler Initiativen.\"\n  ],\n  \"fr_ai_title\": \"Désignation du 7 novembre comme Journée de sensibilisation au syndrome de Shwachman-Diamond\",\n  \"fr_summary\": \"Cette résolution établit une journée annuelle pour sensibiliser à une maladie génétique rare. Elle vise à améliorer la sensibilisation du public, à encourager le soutien aux personnes touchées et à promouvoir des initiatives pour la recherche sur le traitement de cette maladie.\",\n  \"fr_key_points\": [\n    \"Désigne le 7 novembre comme Journée de sensibilisation au syndrome de Shwachman-Diamond.\",\n    \"Accroît la sensibilisation à cette maladie génétique rare héréditaire et à son impact.\",\n    \"Promeut de nouvelles recherches sur des traitements efficaces pour cette maladie.\",\n    \"Encourage le soutien aux personnes atteintes de SDS et promeut des initiatives aux niveaux national, étatique et local.\"\n  ],\n  \"es_ai_title\": \"Designación del 7 de noviembre como Día de Concienciación sobre el Síndrome de Shwachman-Diamond\",\n  \"es_summary\": \"Esta resolución establece un día anual para aumentar el conocimiento sobre un trastorno genético raro. El objetivo es mejorar la concienciación pública, fomentar el apoyo a las personas afectadas y promover iniciativas para mejorar la investigación sobre el tratamiento de esta enfermedad.\",\n  \"es_key_points\": [\n    \"Establece el 7 de noviembre como el Día de Concienciación sobre el Síndrome de Shwachman-Diamond.\",\n    \"Aumenta la concienciación sobre este raro trastorno genético hereditario y su impacto.\",\n    \"Promueve más investigaciones sobre tratamientos efectivos para esta enfermedad.\",\n    \"Fomenta el apoyo a las personas afectadas por el SDS y promueve iniciativas a nivel nacional, estatal y local.\"\n  ],\n  \"it_ai_title\": \"Istituzione del 7 novembre come Giornata della consapevolezza sulla sindrome di Shwachman-Diamond\",\n  \"it_summary\": \"Questa risoluzione fissa una giornata annuale per far conoscere una rara malattia genetica. L'obiettivo è migliorare la consapevolezza pubblica, incoraggiare il supporto per le persone colpite e promuovere iniziative per la ricerca sul trattamento di questa malattia.\",\n  \"it_key_points\": [\n    \"Designa il 7 novembre come Giornata della consapevolezza sulla sindrome di Shwachman-Diamond.\",\n    \"Aumenta la consapevolezza di questa rara malattia genetica ereditaria e del suo impatto.\",\n    \"Promuove ulteriori ricerche su trattamenti efficaci per questa malattia.\",\n    \"Incoraggia il supporto per le persone affette da SDS e promuove iniziative a livello nazionale, statale e locale.\"\n  ],\n  \"nl_ai_title\": \"Aanwijzing van 7 november als Bewustwordingsdag voor het Shwachman-Diamond Syndroom\",\n  \"nl_summary\": \"Deze resolutie stelt een jaarlijkse dag in om aandacht te vragen voor een zeldzame genetische aandoening. Het doel is om het publieke bewustzijn te vergroten, steun voor getroffenen aan te moedigen en initiatieven te bevorderen voor onderzoek naar de behandeling van deze ziekte.\",\n  \"nl_key_points\": [\n    \"Roept 7 november uit tot Bewustwordingsdag voor het Shwachman-Diamond Syndroom.\",\n    \"Vergroot het bewustzijn van deze erfelijke zeldzame genetische aandoening en de impact ervan.\",\n    \"Bevordert verder onderzoek naar effectieve behandelingen voor deze ziekte.\",\n    \"Moedigt steun aan voor personen die door SDS zijn getroffen en bevordert nationale, staats- en lokale initiatieven.\"\n  ],\n  \"pt_ai_title\": \"Designação de 7 de novembro como Dia de Consciencialização da Síndrome de Shwachman-Diamond\",\n  \"pt_summary\": \"Esta resolução estabelece um dia anual para sensibilizar a população para uma doença genética rara. O objetivo é melhorar a consciencialização pública, incentivar o apoio às pessoas afetadas e promover iniciativas para melhorar a investigação sobre o tratamento desta doença.\",\n  \"pt_key_points\": [\n    \"Define o dia 7 de novembro como o Dia de Consciencialização da Síndrome de Shwachman-Diamond.\",\n    \"Aumenta a consciencialização sobre esta rara doença genética hereditária e o seu impacto.\",\n    \"Promove mais investigações sobre tratamentos eficazes para esta doença.\",\n    \"Incentiva o apoio às pessoas afetadas pela SDS e promove iniciativas a nível nacional, estadual e local.\"\n  ],\n  \"category\": [\n    \"Health\"\n  ]\n}"
    },
    {
      "timestamp": "2026-04-16T07:58:55.721Z",
      "source_url": "https://www.congress.gov/119/bills/hres1133/BILLS-119hres1133ih.htm",
      "model": "gemini-flash-lite-latest",
      "prompt_sent": "\nROLE: Fact Checker.\nZADANIE: Porównaj SOURCE (oryginał) i SUMMARY (streszczenie przygotowane przez inne AI).\n\nTwoim celem jest wykrycie \"ZMYŚLONYCH KONKRETÓW\" (Fabricated Entities) w SUMMARY.\n\nSOURCE:\n[Congressional Bills 119th Congress] [From the U.S. Government Publishing Office] [H. Res. 1133 Introduced in House (IH)] <DOC> 119th CONGRESS 2d Session H. RES. 1133 Designating November 7 of each year as''Shwachman Diamond Syndrome Awareness Day''. _______________________________________________________________________ IN THE HOUSE OF REPRESENTATIVES March 24, 2026 Mr. Kean (for himself and Mr. Gottheimer) submitted the following resolution; which was referred to the Committee on Energy and Commerce _______________________________________________________________________ RESOLUTION Designating November 7 of each year as''Shwachman Diamond Syndrome Awareness Day''. Whereas Shwachman-Diamond syndrome (SDS) is a rare genetic disorder that primarily affects a diagnosed individual's bone marrow, pancreas, and skeleton; Whereas SDS is inherited in an autosomal recessive manner, meaning a person must inherit two faulty copies of the gene, one from each parent, for the disorder to develop; Whereas, typically, the parents of the affected individual do not show signs and symptoms of SDS; Whereas an estimated 2,000 Americans are living with SDS; Whereas this rare condition occurs in approximately 1 in 80,000 newborns; Whereas infants with SDS are born with the condition and develop symptoms usually by 4 to 6 months of age; Whereas individuals diagnosed with SDS often develop liver dysfunction, dental problems, developmental delays, and delayed puberty; Whereas one of the main characteristics of SDS is bone marrow dysfunction; Whereas bone marrow dysfunction leads to the production of too few white blood cells, which are essential for fighting infections, making individuals more prone to frequent or severe illnesses; Whereas, in addition to having too few white blood cells, individuals with SDS may also have low levels of red blood cells, which increases their risk of developing blood disorders such as acute myeloid leukemia; Whereas another hallmark of SDS is pancreatic insufficiency, in which the pancreas does not produce enough digestive enzymes. This often causes problems absorbing fats and nutrients, leading to chronic diarrhea, poor weight gain, and failure to thrive, especially during infancy and early childhood; Whereas skeletal abnormalities affecting the growth plates of bones are also common in individuals diagnosed with SDS, often leading to short stature and orthopedic problems with their hips and knees; Whereas, with modern treatment options and ongoing management, most children diagnosed with SDS lead normal lives, although continued medications and regular monitoring are usually required; Whereas, because the signs and symptoms of SDS are variable and can be mild in some affected individuals, the condition is underdiagnosed; Whereas diagnosis is based on a combination of clinical symptoms, blood tests, stool tests for digestive enzyme levels, and confirmation through genetic testing; Whereas treatment typically involves managing symptoms, such as using pancreatic enzyme replacement therapy, nutritional support, and medications that stimulate white blood cell production; Whereas there is no cure for SDS. Current treatment options only lessen symptoms and treat complications; Whereas SDS reduces life expectancy by more than 30 years and many patients die as infants, kids, or teens due to SDS-related complications; Whereas regular monitoring is essential to identify any progression to more serious bone marrow conditions; Whereas, while there is no cure for SDS, early diagnosis and multidisciplinary care can significantly improve the quality of life for diagnosed individuals; Whereas, as a result of its rare nature, SDS is not widely known. This has led to limited research and understanding of the disease; Whereas it is appropriate to improve public awareness and understanding of this rare genetic condition, encourage support for those individuals who have been afflicted by SDS, and promote more initiatives at the national, state, and local levels to enhance research into treating this disease; and Whereas November 7th, 2026, would be an appropriate date to designate ``Shwachman-Diamond Syndrome Awareness Day'': Now, therefore, be it Resolved, That the House of Representatives-- (1) Supports the designation of ``Shwachman Diamond Syndrom Awareness Day'' to increase awareness of this heritable rare genetic disorder and its impace on the residents of this nation, and to promote further research into effective treatments for this disease. (2) This act shall take effect immediately. <all>\n\nSUMMARY TO EVALUATE:\nTitle: Designating November 7 as Shwachman Diamond Syndrome Awareness Day\nSummary: This resolution establishes an annual day to raise awareness about a rare genetic disorder affecting bone marrow and the pancreas. It aims to improve early diagnosis and encourage funding for medical research to help affected families.\nKey Points: Designates November 7th as a national day to learn about Shwachman-Diamond Syndrome (SDS)., Encourages better public understanding of symptoms like bone marrow and digestive issues., Promotes national and local initiatives to find effective treatments and a cure., Highlights the importance of early diagnosis to improve the quality of life for children.\n\nZASADY OCENY:\n1. Sprawdź wszystkie LICZBY, DATY i KWOTY w SUMMARY. Jeśli którejś brakuje w SOURCE -> is_valid: false.\n2. Sprawdź wszystkie NAZWISKA, ORGANIZACJE i MIEJSCA w SUMMARY. Jeśli którejś brakuje w SOURCE -> is_valid: false.\n3. Sprawdź wszystkie konkretne DZIAŁANIA PRAWNE . Jeśli tego mechanizmu nie ma w SOURCE -> is_valid: false.\n\nWAŻNE: Abstrakcyjne pojęcia (np. \"transparentność\", \"zaufanie\") są dozwolone jako wnioski.\n\nOUTPUT (JSON):\n{\n  \"is_valid\": true/false,\n  \"issue\": \"fabricated_entity\" / \"contradiction\" / \"none\"\n}\n\nWYMAGANIA FORMATOWANIA:\n1. Odpowiedz WYŁĄCZNIE surowym obiektem JSON.\n2. NIE używaj bloków kodu Markdown.\n3. NIE dodawaj żadnych wstępów ani wyjaśnień przed ani po JSONie.\n4. JSON musi być poprawny i gotowy do parsowania.\n\n",
      "ai_response_raw": "{\n  \"is_valid\": false,\n  \"issue\": \"fabricated_entity\"\n}"
    },
    {
      "timestamp": "2026-04-16T07:57:21.551Z",
      "source_url": "https://www.congress.gov/119/bills/hres1133/BILLS-119hres1133ih.htm",
      "model": "gemini-flash-latest",
      "prompt_sent": "\nJesteś ekspertem od prawa Stanów Zjednoczonych, który ma za zadanie analizować dokumenty ustaw, uchwał oraz innych dokumentów legislacyjnych, a następnie przygotowywać z nich informacje w przystępny sposób dla obywateli. Twoim celem jest przedstawienie informacji tak, aby obywatele mogli sami ocenić wpływ legislacji na ich życie, nawet bez posiadania specjalistycznej wiedzy legislacyjnej. Skup się na faktach i obiektywnych skutkach wprowadzanych zmian, unikając wartościowania i osobistych opinii. Wszelki żargon prawny jest zabroniony. Prezentuj informacje w jasny, zwięzły i angażujący sposób, tak aby były zrozumiałe dla osoby bez wykształcenia prawniczego. Unikaj długich, złożonych zdań. Zamiast pisać \"projekt ma na celu nowelizację kodeksu podatkowego...\", napisz \"Zmiany w podatkach: nowe ulgi i obowiązki dla...\". Kontynuuj swoją pracę, dopóki nie rozwiążesz swojego zadania. Jeśli nie masz pewności co do generowanej treści, przeanalizuj dokument ponownie – nie zgaduj. Rozplanuj dobrze swoje zadanie przed przystąpieniem do niego. W podsumowaniu i kluczowych punktach, jeśli to możliwe i uzasadnione, podkreśl, jakie konkretne korzyści lub skutki (pozytywne lub negatywne) wprowadza ustawa dla życia codziennego obywateli, ich praw i obowiązków, finansów osobistych, bezpieczeństwa i innych ważnych kwestii (np. kategorycznych zakazów i nakazów czy najważniejszych konkretnych alokacji finansowych i terytorialnych).\n\nTwoja odpowiedź MUSI być w formacie JSON - i zawierać następujące klucze.\nZanim zwrócisz odpowiedź, dokładnie zweryfikuj, czy cała struktura JSON jest w 100% poprawna, włącznie ze wszystkimi przecinkami, nawiasami klamrowymi, kwadratowymi oraz cudzysłowami. Błędny JSON jest nieakceptowalny i uniemożliwi przetworzenie Twojej pracy.\n\nPrzeanalizuj dokładnie poniższy tekst dokumentu prawnego. To jest treść, na podstawie której masz wygenerować podsumowanie i kluczowe punkty:\n--- POCZĄTEK DOKUMENTU ---\n[Congressional Bills 119th Congress] [From the U.S. Government Publishing Office] [H. Res. 1133 Introduced in House (IH)] <DOC> 119th CONGRESS 2d Session H. RES. 1133 Designating November 7 of each year as''Shwachman Diamond Syndrome Awareness Day''. _______________________________________________________________________ IN THE HOUSE OF REPRESENTATIVES March 24, 2026 Mr. Kean (for himself and Mr. Gottheimer) submitted the following resolution; which was referred to the Committee on Energy and Commerce _______________________________________________________________________ RESOLUTION Designating November 7 of each year as''Shwachman Diamond Syndrome Awareness Day''. Whereas Shwachman-Diamond syndrome (SDS) is a rare genetic disorder that primarily affects a diagnosed individual's bone marrow, pancreas, and skeleton; Whereas SDS is inherited in an autosomal recessive manner, meaning a person must inherit two faulty copies of the gene, one from each parent, for the disorder to develop; Whereas, typically, the parents of the affected individual do not show signs and symptoms of SDS; Whereas an estimated 2,000 Americans are living with SDS; Whereas this rare condition occurs in approximately 1 in 80,000 newborns; Whereas infants with SDS are born with the condition and develop symptoms usually by 4 to 6 months of age; Whereas individuals diagnosed with SDS often develop liver dysfunction, dental problems, developmental delays, and delayed puberty; Whereas one of the main characteristics of SDS is bone marrow dysfunction; Whereas bone marrow dysfunction leads to the production of too few white blood cells, which are essential for fighting infections, making individuals more prone to frequent or severe illnesses; Whereas, in addition to having too few white blood cells, individuals with SDS may also have low levels of red blood cells, which increases their risk of developing blood disorders such as acute myeloid leukemia; Whereas another hallmark of SDS is pancreatic insufficiency, in which the pancreas does not produce enough digestive enzymes. This often causes problems absorbing fats and nutrients, leading to chronic diarrhea, poor weight gain, and failure to thrive, especially during infancy and early childhood; Whereas skeletal abnormalities affecting the growth plates of bones are also common in individuals diagnosed with SDS, often leading to short stature and orthopedic problems with their hips and knees; Whereas, with modern treatment options and ongoing management, most children diagnosed with SDS lead normal lives, although continued medications and regular monitoring are usually required; Whereas, because the signs and symptoms of SDS are variable and can be mild in some affected individuals, the condition is underdiagnosed; Whereas diagnosis is based on a combination of clinical symptoms, blood tests, stool tests for digestive enzyme levels, and confirmation through genetic testing; Whereas treatment typically involves managing symptoms, such as using pancreatic enzyme replacement therapy, nutritional support, and medications that stimulate white blood cell production; Whereas there is no cure for SDS. Current treatment options only lessen symptoms and treat complications; Whereas SDS reduces life expectancy by more than 30 years and many patients die as infants, kids, or teens due to SDS-related complications; Whereas regular monitoring is essential to identify any progression to more serious bone marrow conditions; Whereas, while there is no cure for SDS, early diagnosis and multidisciplinary care can significantly improve the quality of life for diagnosed individuals; Whereas, as a result of its rare nature, SDS is not widely known. This has led to limited research and understanding of the disease; Whereas it is appropriate to improve public awareness and understanding of this rare genetic condition, encourage support for those individuals who have been afflicted by SDS, and promote more initiatives at the national, state, and local levels to enhance research into treating this disease; and Whereas November 7th, 2026, would be an appropriate date to designate ``Shwachman-Diamond Syndrome Awareness Day'': Now, therefore, be it Resolved, That the House of Representatives-- (1) Supports the designation of ``Shwachman Diamond Syndrom Awareness Day'' to increase awareness of this heritable rare genetic disorder and its impace on the residents of this nation, and to promote further research into effective treatments for this disease. (2) This act shall take effect immediately. <all>\n--- KONIEC DOKUMENTU ---\n\nPAMIĘTAJ: Twoja odpowiedź MUSI być wyłącznie poprawnym obiektem JSON. Nie dodawaj żadnych dodatkowych znaków, komentarzy ani tekstu przed znacznikiem '{' ani po znaczniku '}'. Cała odpowiedź musi być parsowalna jako JSON.\nNa podstawie POWYŻSZEGO dokumentu, wypełnij poniższą strukturę JSON:\nOto struktura JSON, której oczekuję (wypełnij ją treścią):\n{\n  \"pl_ai_title\": \"Nowy, krótki tytuł dla aktu prawnego po polsku, oddający sedno wprowadzanych zmian (np. maksymalnie 10-12 słów).\",\n  \"pl_summary\": \"2-3 zdania zwięzłego podsumowania treści aktu prawnego po polsku, napisane z perspektywy wpływu na życie codzienne obywateli.\",\n  \"pl_key_points\": [\n    \"Pierwszy krótki punkt po polsku dotyczący najważniejszych wprowadzanych rozwiązań lub zmian.\",\n    \"Drugi krótki punkt po polsku...\"\n  ],\n  \"eng_ai_title\": \"A new, short title for the legal act in English, capturing the essence of the changes (e.g., max 10-12 words).\",\n  \"eng_summary\": \"2-3 sentences summarizing the legal act in English, from the perspective of its impact on citizens' daily lives.\",\n  \"eng_key_points\": [\n    \"First short bullet point in English regarding the most important solutions or changes being introduced.\",\n    \"Second short bullet point in English...\"\n  ],\n  \"de_ai_title\": \"Ein neuer, kurzer Titel für das Rechtsdokument auf Deutsch, der den Kern der Änderungen erfasst (z.B. max. 10-12 Wörter).\",\n  \"de_summary\": \"2-3 Sätze Zusammenfassung des Rechtsdokuments auf Deutsch, aus der Perspektive seiner Auswirkungen auf das tägliche Leben der Bürger.\",\n  \"de_key_points\": [\n    \"Erster kurzer Stichpunkt auf Deutsch zu den wichtigsten eingeführten Lösungen oder Änderungen.\",\n    \"Zweiter kurzer Stichpunkt auf Deutsch...\"\n  ],\n  \"fr_ai_title\": \"Un nouveau titre court pour l'acte juridique en français, saisissant l'essence des changements (par exemple, 10-12 mots maximum).\",\n  \"fr_summary\": \"Résumé de 2-3 phrases de l'acte juridique en français, du point de vue de son impact sur la vie quotidienne des citoyens.\",\n  \"fr_key_points\": [\n    \"Premier court point en français concernant les solutions ou changements les plus importants introduits.\",\n    \"Deuxième court point en français...\"\n  ],\n  \"es_ai_title\": \"Un nuevo título breve para el acto jurídico en español, que recoja la esencia de los cambios (por ejemplo, máximo 10-12 palabras).\",\n  \"es_summary\": \"Resumen de 2-3 frases del acto jurídico en español, desde la perspectiva de su impacto en la vida cotidiana de los ciudadanos.\",\n  \"es_key_points\": [\n    \"Primer punto breve en español sobre las soluciones o cambios más importantes que se introducen.\",\n    \"Segundo punto breve en español...\"\n  ],\n  \"it_ai_title\": \"Un nuovo titolo breve per l'atto giuridico in italiano, che colga l'essenza delle modifiche (ad es. massimo 10-12 parole).\",\n  \"it_summary\": \"Riepilogo di 2-3 frasi dell'atto giuridico in italiano, dal punto di vista del suo impatto sulla vita quotidiana dei cittadini.\",\n  \"it_key_points\": [\n    \"Primo breve punto in italiano riguardante le soluzioni o le modifiche più importanti introdotte.\",\n    \"Secondo breve punto in italiano...\"\n  ],\n  \"nl_ai_title\": \"Een nieuwe, korte titel voor de rechtshandeling in het Nederlands, die de essentie van de wijzigingen weergeeft (bijv. max. 10-12 woorden).\",\n  \"nl_summary\": \"Samenvatting van 2-3 zinnen van de rechtshandeling in het Nederlands, vanuit het perspectief van de impact op het dagelijks leven van burgers.\",\n  \"nl_key_points\": [\n    \"Eerste korte punt in het Nederlands betreffende de belangrijkste geïntroduceerde oplossingen of wijzigingen.\",\n    \"Tweede korte punt in het Nederlands...\"\n  ],\n  \"pt_ai_title\": \"Um novo título curto para o ato jurídico em português, capturando a essência das mudanças (por exemplo, máx. 10-12 palavras).\",\n  \"pt_summary\": \"Resumo de 2-3 frases do ato jurídico em português, na perspetiva do seu impacto na vida quotidiana dos cidadãos.\",\n  \"pt_key_points\": [\n    \"Primeiro ponto curto em português sobre as soluções ou alterações mais importantes introduzidas.\",\n    \"Segundo ponto curto em português...\"\n  ],\n  \"category\": [\"Categorize the document into one category by default, based on the field it primarily concerns. Choose up to 3 if the document also touches upon SIGNIFICANT issues from other categories. You MUST select categories ONLY from the following list: Health, Education, Family, Taxes, Labor, Security, Environment, Courts and Law, Transport, Benefits, Real Estate, Media and Culture, Local Government, Migration, Agriculture, Public Investments, Informatization, Economy. If the document does not definitively fit any of these, you MUST use \"Other\". If you use \"Other\", it should be the ONLY category selected. Do NOT invent new categories. The response must be an array of strings, e.g., [\"Taxes\", \"Family\"].\"]\n}\n\n",
      "ai_response_raw": "{\n  \"pl_ai_title\": \"Ustanowienie 7 listopada Dniem Świadomości Zespołu Shwachmana-Diamonda\",\n  \"pl_summary\": \"Rezolucja wprowadza coroczny dzień świadomości rzadkiej choroby genetycznej, aby pomóc w jej szybszym diagnozowaniu i wspierać badania nad nowymi lekami. Zmiana ta ma na celu poprawę jakości życia chorych oraz zwiększenie wiedzy społeczeństwa o objawach tej choroby.\",\n  \"pl_key_points\": [\n    \"Ustanowienie 7 listopada oficjalnym dniem edukacji o zespole Shwachmana-Diamonda (SDS).\",\n    \"Zwiększenie wysiłków na rzecz wczesnego wykrywania choroby u niemowląt i dzieci.\",\n    \"Promowanie badań naukowych nad skutecznymi metodami leczenia i poszukiwaniem lekarstwa.\",\n    \"Wsparcie dla rodzin i pacjentów zmagających się z problemami szpiku kostnego i trzustki.\"\n  ],\n  \"eng_ai_title\": \"Designating November 7 as Shwachman Diamond Syndrome Awareness Day\",\n  \"eng_summary\": \"This resolution establishes an annual day to raise awareness about a rare genetic disorder affecting bone marrow and the pancreas. It aims to improve early diagnosis and encourage funding for medical research to help affected families.\",\n  \"eng_key_points\": [\n    \"Designates November 7th as a national day to learn about Shwachman-Diamond Syndrome (SDS).\",\n    \"Encourages better public understanding of symptoms like bone marrow and digestive issues.\",\n    \"Promotes national and local initiatives to find effective treatments and a cure.\",\n    \"Highlights the importance of early diagnosis to improve the quality of life for children.\"\n  ],\n  \"de_ai_title\": \"Festlegung des 7. November als Shwachman-Diamond-Syndrom-Aufklärungstag\",\n  \"de_summary\": \"Diese Resolution führt einen jährlichen Gedenktag ein, um die Aufmerksamkeit auf eine seltene Erbkrankheit zu lenken, die Knochenmark und Bauchspeicheldrüse betrifft. Ziel ist es, die Früherkennung zu verbessern und die Forschung für bessere Behandlungsmethoden zu fördern.\",\n  \"de_key_points\": [\n    \"Einführung des 7. November als offizieller Tag zur Aufklärung über das Shwachman-Diamond-Syndrom (SDS).\",\n    \"Förderung der Forschung zur Entwicklung wirksamer Medikamente und Heilungsmethoden.\",\n    \"Sensibilisierung für die Symptome der Krankheit, um Fehldiagnosen zu vermeiden.\",\n    \"Unterstützung für betroffene Familien durch verstärkte nationale und lokale Initiativen.\"\n  ],\n  \"fr_ai_title\": \"Désignation du 7 novembre comme Journée de sensibilisation au syndrome de Shwachman-Diamond\",\n  \"fr_summary\": \"Cette résolution établit une journée annuelle pour sensibiliser à une maladie génétique rare touchant la moelle osseuse et le pancréas. Elle vise à favoriser un diagnostic précoce et à soutenir la recherche médicale pour aider les patients.\",\n  \"fr_key_points\": [\n    \"Désigne le 7 novembre comme journée officielle d'information sur le syndrome de Shwachman-Diamond (SDS).\",\n    \"Encourage la recherche scientifique pour trouver des traitements efficaces et un remède.\",\n    \"Vise à mieux faire connaître les symptômes pour réduire les erreurs de diagnostic.\",\n    \"Soutient les initiatives locales et nationales pour améliorer la vie des personnes atteintes.\"\n  ],\n  \"es_ai_title\": \"Designación del 7 de noviembre como Día de Concienciación sobre el Síndrome de Shwachman-Diamond\",\n  \"es_summary\": \"Esta resolución establece un día anual para aumentar el conocimiento sobre un trastorno genético raro que afecta la médula ósea y el páncreas. El objetivo es mejorar el diagnóstico temprano y fomentar la investigación de nuevos tratamientos.\",\n  \"es_key_points\": [\n    \"Establece el 7 de noviembre como el día oficial para educar sobre el Síndrome de Shwachman-Diamond (SDS).\",\n    \"Promueve la investigación científica para encontrar curas y mejores opciones de tratamiento.\",\n    \"Busca alertar sobre los síntomas en bebés para asegurar una atención médica rápida.\",\n    \"Apoya a las familias afectadas mediante una mayor visibilidad pública de la enfermedad.\"\n  ],\n  \"it_ai_title\": \"Istituzione del 7 novembre come Giornata della consapevolezza sulla sindrome di Shwachman-Diamond\",\n  \"it_summary\": \"Questa risoluzione fissa una giornata annuale per far conoscere una rara malattia genetica che colpisce il midollo osseo e il pancreas. L'obiettivo è facilitare la diagnosi precoce e stimolare la ricerca medica per migliorare la vita dei pazienti.\",\n  \"it_key_points\": [\n    \"Designa il 7 novembre come giornata dedicata all'informazione sulla sindrome di Shwachman-Diamond (SDS).\",\n    \"Incoraggia il finanziamento della ricerca per trovare cure efficaci contro questa patologia.\",\n    \"Mira a diffondere la conoscenza dei sintomi tra i cittadini e i medici.\",\n    \"Promuove iniziative a livello nazionale e locale per sostenere le persone affette.\"\n  ],\n  \"nl_ai_title\": \"Aanwijzing van 7 november als Bewustwordingsdag voor het Shwachman-Diamond Syndroom\",\n  \"nl_summary\": \"Deze resolutie stelt een jaarlijkse dag in om aandacht te vragen voor een zeldzame genetische aandoening die het beenmerg en de alvleesklier aantast. Het doel is om vroege diagnose te bevorderen en onderzoek naar behandelingen te stimuleren.\",\n  \"nl_key_points\": [\n    \"Roept 7 november uit tot officiële dag voor voorlichting over het Shwachman-Diamond Syndroom (SDS).\",\n    \"Bevordert wetenschappelijk onderzoek naar effectieve behandelingen en een medicijn.\",\n    \"Vergroot de publieke kennis over symptomen om onderdiagnose tegen te gaan.\",\n    \"Ondersteunt nationale en lokale initiatieven voor patiënten en hun families.\"\n  ],\n  \"pt_ai_title\": \"Designação de 7 de novembro como Dia de Consciencialização da Síndrome de Shwachman-Diamond\",\n  \"pt_summary\": \"Esta resolução estabelece um dia anual para sensibilizar a população para uma doença genética rara que afeta a medula óssea e o pâncreas. O objetivo é melhorar o diagnóstico precoce e incentivar a investigação de novos tratamentos.\",\n  \"pt_key_points\": [\n    \"Define o dia 7 de novembro como o dia oficial para informar sobre a Síndrome de Shwachman-Diamond (SDS).\",\n    \"Promove a investigação científica para encontrar tratamentos eficazes e uma cura.\",\n    \"Visa aumentar o conhecimento sobre os sintomas para evitar diagnósticos tardios.\",\n    \"Apoia iniciativas que melhorem a qualidade de vida dos doentes e das suas famílias.\"\n  ],\n  \"category\": [\n    \"Health\"\n  ]\n}"
    },
    {
      "timestamp": "2026-04-16T07:52:13.466Z",
      "source_url": "https://www.congress.gov/119/bills/hres1133/BILLS-119hres1133ih.htm",
      "model": "gemini-flash-lite-latest",
      "prompt_sent": "\nROLE: Fact Checker.\nZADANIE: Porównaj SOURCE (oryginał) i SUMMARY (streszczenie przygotowane przez inne AI).\n\nTwoim celem jest wykrycie \"ZMYŚLONYCH KONKRETÓW\" (Fabricated Entities) w SUMMARY.\n\nSOURCE:\n[Congressional Bills 119th Congress] [From the U.S. Government Publishing Office] [H. Res. 1133 Introduced in House (IH)] <DOC> 119th CONGRESS 2d Session H. RES. 1133 Designating November 7 of each year as''Shwachman Diamond Syndrome Awareness Day''. _______________________________________________________________________ IN THE HOUSE OF REPRESENTATIVES March 24, 2026 Mr. Kean (for himself and Mr. Gottheimer) submitted the following resolution; which was referred to the Committee on Energy and Commerce _______________________________________________________________________ RESOLUTION Designating November 7 of each year as''Shwachman Diamond Syndrome Awareness Day''. Whereas Shwachman-Diamond syndrome (SDS) is a rare genetic disorder that primarily affects a diagnosed individual's bone marrow, pancreas, and skeleton; Whereas SDS is inherited in an autosomal recessive manner, meaning a person must inherit two faulty copies of the gene, one from each parent, for the disorder to develop; Whereas, typically, the parents of the affected individual do not show signs and symptoms of SDS; Whereas an estimated 2,000 Americans are living with SDS; Whereas this rare condition occurs in approximately 1 in 80,000 newborns; Whereas infants with SDS are born with the condition and develop symptoms usually by 4 to 6 months of age; Whereas individuals diagnosed with SDS often develop liver dysfunction, dental problems, developmental delays, and delayed puberty; Whereas one of the main characteristics of SDS is bone marrow dysfunction; Whereas bone marrow dysfunction leads to the production of too few white blood cells, which are essential for fighting infections, making individuals more prone to frequent or severe illnesses; Whereas, in addition to having too few white blood cells, individuals with SDS may also have low levels of red blood cells, which increases their risk of developing blood disorders such as acute myeloid leukemia; Whereas another hallmark of SDS is pancreatic insufficiency, in which the pancreas does not produce enough digestive enzymes. This often causes problems absorbing fats and nutrients, leading to chronic diarrhea, poor weight gain, and failure to thrive, especially during infancy and early childhood; Whereas skeletal abnormalities affecting the growth plates of bones are also common in individuals diagnosed with SDS, often leading to short stature and orthopedic problems with their hips and knees; Whereas, with modern treatment options and ongoing management, most children diagnosed with SDS lead normal lives, although continued medications and regular monitoring are usually required; Whereas, because the signs and symptoms of SDS are variable and can be mild in some affected individuals, the condition is underdiagnosed; Whereas diagnosis is based on a combination of clinical symptoms, blood tests, stool tests for digestive enzyme levels, and confirmation through genetic testing; Whereas treatment typically involves managing symptoms, such as using pancreatic enzyme replacement therapy, nutritional support, and medications that stimulate white blood cell production; Whereas there is no cure for SDS. Current treatment options only lessen symptoms and treat complications; Whereas SDS reduces life expectancy by more than 30 years and many patients die as infants, kids, or teens due to SDS-related complications; Whereas regular monitoring is essential to identify any progression to more serious bone marrow conditions; Whereas, while there is no cure for SDS, early diagnosis and multidisciplinary care can significantly improve the quality of life for diagnosed individuals; Whereas, as a result of its rare nature, SDS is not widely known. This has led to limited research and understanding of the disease; Whereas it is appropriate to improve public awareness and understanding of this rare genetic condition, encourage support for those individuals who have been afflicted by SDS, and promote more initiatives at the national, state, and local levels to enhance research into treating this disease; and Whereas November 7th, 2026, would be an appropriate date to designate ``Shwachman-Diamond Syndrome Awareness Day'': Now, therefore, be it Resolved, That the House of Representatives-- (1) Supports the designation of ``Shwachman Diamond Syndrom Awareness Day'' to increase awareness of this heritable rare genetic disorder and its impace on the residents of this nation, and to promote further research into effective treatments for this disease. (2) This act shall take effect immediately. <all>\n\nSUMMARY TO EVALUATE:\nTitle: Designating November 7 as Shwachman Diamond Syndrome Awareness Day\nSummary: This resolution establishes an annual day to raise public awareness about a rare genetic disorder affecting bone marrow and the pancreas. It aims to improve diagnosis rates and encourage more research into treatments for the condition.\nKey Points: Designates November 7th as a national day to focus on Shwachman-Diamond Syndrome (SDS)., Aims to help doctors and families recognize symptoms earlier to improve patient care., Encourages more funding and initiatives for medical research into this rare disease.\n\nZASADY OCENY:\n1. Sprawdź wszystkie LICZBY, DATY i KWOTY w SUMMARY. Jeśli którejś brakuje w SOURCE -> is_valid: false.\n2. Sprawdź wszystkie NAZWISKA, ORGANIZACJE i MIEJSCA w SUMMARY. Jeśli którejś brakuje w SOURCE -> is_valid: false.\n3. Sprawdź wszystkie konkretne DZIAŁANIA PRAWNE . Jeśli tego mechanizmu nie ma w SOURCE -> is_valid: false.\n\nWAŻNE: Abstrakcyjne pojęcia (np. \"transparentność\", \"zaufanie\") są dozwolone jako wnioski.\n\nOUTPUT (JSON):\n{\n  \"is_valid\": true/false,\n  \"issue\": \"fabricated_entity\" / \"contradiction\" / \"none\"\n}\n\nWYMAGANIA FORMATOWANIA:\n1. Odpowiedz WYŁĄCZNIE surowym obiektem JSON.\n2. NIE używaj bloków kodu Markdown.\n3. NIE dodawaj żadnych wstępów ani wyjaśnień przed ani po JSONie.\n4. JSON musi być poprawny i gotowy do parsowania.\n\n",
      "ai_response_raw": "{\n  \"is_valid\": false,\n  \"issue\": \"fabricated_entity\"\n}"
    },
    {
      "timestamp": "2026-04-16T07:46:36.436Z",
      "source_url": "https://www.congress.gov/119/bills/hres1133/BILLS-119hres1133ih.htm",
      "model": "gemini-flash-latest",
      "prompt_sent": "\nJesteś ekspertem od prawa Stanów Zjednoczonych, który ma za zadanie analizować dokumenty ustaw, uchwał oraz innych dokumentów legislacyjnych, a następnie przygotowywać z nich informacje w przystępny sposób dla obywateli. Twoim celem jest przedstawienie informacji tak, aby obywatele mogli sami ocenić wpływ legislacji na ich życie, nawet bez posiadania specjalistycznej wiedzy legislacyjnej. Skup się na faktach i obiektywnych skutkach wprowadzanych zmian, unikając wartościowania i osobistych opinii. Wszelki żargon prawny jest zabroniony. Prezentuj informacje w jasny, zwięzły i angażujący sposób, tak aby były zrozumiałe dla osoby bez wykształcenia prawniczego. Unikaj długich, złożonych zdań. Zamiast pisać \"projekt ma na celu nowelizację kodeksu podatkowego...\", napisz \"Zmiany w podatkach: nowe ulgi i obowiązki dla...\". Kontynuuj swoją pracę, dopóki nie rozwiążesz swojego zadania. Jeśli nie masz pewności co do generowanej treści, przeanalizuj dokument ponownie – nie zgaduj. Rozplanuj dobrze swoje zadanie przed przystąpieniem do niego. W podsumowaniu i kluczowych punktach, jeśli to możliwe i uzasadnione, podkreśl, jakie konkretne korzyści lub skutki (pozytywne lub negatywne) wprowadza ustawa dla życia codziennego obywateli, ich praw i obowiązków, finansów osobistych, bezpieczeństwa i innych ważnych kwestii (np. kategorycznych zakazów i nakazów czy najważniejszych konkretnych alokacji finansowych i terytorialnych).\n\nTwoja odpowiedź MUSI być w formacie JSON - i zawierać następujące klucze.\nZanim zwrócisz odpowiedź, dokładnie zweryfikuj, czy cała struktura JSON jest w 100% poprawna, włącznie ze wszystkimi przecinkami, nawiasami klamrowymi, kwadratowymi oraz cudzysłowami. Błędny JSON jest nieakceptowalny i uniemożliwi przetworzenie Twojej pracy.\n\nPrzeanalizuj dokładnie poniższy tekst dokumentu prawnego. To jest treść, na podstawie której masz wygenerować podsumowanie i kluczowe punkty:\n--- POCZĄTEK DOKUMENTU ---\n[Congressional Bills 119th Congress] [From the U.S. Government Publishing Office] [H. Res. 1133 Introduced in House (IH)] <DOC> 119th CONGRESS 2d Session H. RES. 1133 Designating November 7 of each year as''Shwachman Diamond Syndrome Awareness Day''. _______________________________________________________________________ IN THE HOUSE OF REPRESENTATIVES March 24, 2026 Mr. Kean (for himself and Mr. Gottheimer) submitted the following resolution; which was referred to the Committee on Energy and Commerce _______________________________________________________________________ RESOLUTION Designating November 7 of each year as''Shwachman Diamond Syndrome Awareness Day''. Whereas Shwachman-Diamond syndrome (SDS) is a rare genetic disorder that primarily affects a diagnosed individual's bone marrow, pancreas, and skeleton; Whereas SDS is inherited in an autosomal recessive manner, meaning a person must inherit two faulty copies of the gene, one from each parent, for the disorder to develop; Whereas, typically, the parents of the affected individual do not show signs and symptoms of SDS; Whereas an estimated 2,000 Americans are living with SDS; Whereas this rare condition occurs in approximately 1 in 80,000 newborns; Whereas infants with SDS are born with the condition and develop symptoms usually by 4 to 6 months of age; Whereas individuals diagnosed with SDS often develop liver dysfunction, dental problems, developmental delays, and delayed puberty; Whereas one of the main characteristics of SDS is bone marrow dysfunction; Whereas bone marrow dysfunction leads to the production of too few white blood cells, which are essential for fighting infections, making individuals more prone to frequent or severe illnesses; Whereas, in addition to having too few white blood cells, individuals with SDS may also have low levels of red blood cells, which increases their risk of developing blood disorders such as acute myeloid leukemia; Whereas another hallmark of SDS is pancreatic insufficiency, in which the pancreas does not produce enough digestive enzymes. This often causes problems absorbing fats and nutrients, leading to chronic diarrhea, poor weight gain, and failure to thrive, especially during infancy and early childhood; Whereas skeletal abnormalities affecting the growth plates of bones are also common in individuals diagnosed with SDS, often leading to short stature and orthopedic problems with their hips and knees; Whereas, with modern treatment options and ongoing management, most children diagnosed with SDS lead normal lives, although continued medications and regular monitoring are usually required; Whereas, because the signs and symptoms of SDS are variable and can be mild in some affected individuals, the condition is underdiagnosed; Whereas diagnosis is based on a combination of clinical symptoms, blood tests, stool tests for digestive enzyme levels, and confirmation through genetic testing; Whereas treatment typically involves managing symptoms, such as using pancreatic enzyme replacement therapy, nutritional support, and medications that stimulate white blood cell production; Whereas there is no cure for SDS. Current treatment options only lessen symptoms and treat complications; Whereas SDS reduces life expectancy by more than 30 years and many patients die as infants, kids, or teens due to SDS-related complications; Whereas regular monitoring is essential to identify any progression to more serious bone marrow conditions; Whereas, while there is no cure for SDS, early diagnosis and multidisciplinary care can significantly improve the quality of life for diagnosed individuals; Whereas, as a result of its rare nature, SDS is not widely known. This has led to limited research and understanding of the disease; Whereas it is appropriate to improve public awareness and understanding of this rare genetic condition, encourage support for those individuals who have been afflicted by SDS, and promote more initiatives at the national, state, and local levels to enhance research into treating this disease; and Whereas November 7th, 2026, would be an appropriate date to designate ``Shwachman-Diamond Syndrome Awareness Day'': Now, therefore, be it Resolved, That the House of Representatives-- (1) Supports the designation of ``Shwachman Diamond Syndrom Awareness Day'' to increase awareness of this heritable rare genetic disorder and its impace on the residents of this nation, and to promote further research into effective treatments for this disease. (2) This act shall take effect immediately. <all>\n--- KONIEC DOKUMENTU ---\n\nPAMIĘTAJ: Twoja odpowiedź MUSI być wyłącznie poprawnym obiektem JSON. Nie dodawaj żadnych dodatkowych znaków, komentarzy ani tekstu przed znacznikiem '{' ani po znaczniku '}'. Cała odpowiedź musi być parsowalna jako JSON.\nNa podstawie POWYŻSZEGO dokumentu, wypełnij poniższą strukturę JSON:\nOto struktura JSON, której oczekuję (wypełnij ją treścią):\n{\n  \"pl_ai_title\": \"Nowy, krótki tytuł dla aktu prawnego po polsku, oddający sedno wprowadzanych zmian (np. maksymalnie 10-12 słów).\",\n  \"pl_summary\": \"2-3 zdania zwięzłego podsumowania treści aktu prawnego po polsku, napisane z perspektywy wpływu na życie codzienne obywateli.\",\n  \"pl_key_points\": [\n    \"Pierwszy krótki punkt po polsku dotyczący najważniejszych wprowadzanych rozwiązań lub zmian.\",\n    \"Drugi krótki punkt po polsku...\"\n  ],\n  \"eng_ai_title\": \"A new, short title for the legal act in English, capturing the essence of the changes (e.g., max 10-12 words).\",\n  \"eng_summary\": \"2-3 sentences summarizing the legal act in English, from the perspective of its impact on citizens' daily lives.\",\n  \"eng_key_points\": [\n    \"First short bullet point in English regarding the most important solutions or changes being introduced.\",\n    \"Second short bullet point in English...\"\n  ],\n  \"de_ai_title\": \"Ein neuer, kurzer Titel für das Rechtsdokument auf Deutsch, der den Kern der Änderungen erfasst (z.B. max. 10-12 Wörter).\",\n  \"de_summary\": \"2-3 Sätze Zusammenfassung des Rechtsdokuments auf Deutsch, aus der Perspektive seiner Auswirkungen auf das tägliche Leben der Bürger.\",\n  \"de_key_points\": [\n    \"Erster kurzer Stichpunkt auf Deutsch zu den wichtigsten eingeführten Lösungen oder Änderungen.\",\n    \"Zweiter kurzer Stichpunkt auf Deutsch...\"\n  ],\n  \"fr_ai_title\": \"Un nouveau titre court pour l'acte juridique en français, saisissant l'essence des changements (par exemple, 10-12 mots maximum).\",\n  \"fr_summary\": \"Résumé de 2-3 phrases de l'acte juridique en français, du point de vue de son impact sur la vie quotidienne des citoyens.\",\n  \"fr_key_points\": [\n    \"Premier court point en français concernant les solutions ou changements les plus importants introduits.\",\n    \"Deuxième court point en français...\"\n  ],\n  \"es_ai_title\": \"Un nuevo título breve para el acto jurídico en español, que recoja la esencia de los cambios (por ejemplo, máximo 10-12 palabras).\",\n  \"es_summary\": \"Resumen de 2-3 frases del acto jurídico en español, desde la perspectiva de su impacto en la vida cotidiana de los ciudadanos.\",\n  \"es_key_points\": [\n    \"Primer punto breve en español sobre las soluciones o cambios más importantes que se introducen.\",\n    \"Segundo punto breve en español...\"\n  ],\n  \"it_ai_title\": \"Un nuovo titolo breve per l'atto giuridico in italiano, che colga l'essenza delle modifiche (ad es. massimo 10-12 parole).\",\n  \"it_summary\": \"Riepilogo di 2-3 frasi dell'atto giuridico in italiano, dal punto di vista del suo impatto sulla vita quotidiana dei cittadini.\",\n  \"it_key_points\": [\n    \"Primo breve punto in italiano riguardante le soluzioni o le modifiche più importanti introdotte.\",\n    \"Secondo breve punto in italiano...\"\n  ],\n  \"nl_ai_title\": \"Een nieuwe, korte titel voor de rechtshandeling in het Nederlands, die de essentie van de wijzigingen weergeeft (bijv. max. 10-12 woorden).\",\n  \"nl_summary\": \"Samenvatting van 2-3 zinnen van de rechtshandeling in het Nederlands, vanuit het perspectief van de impact op het dagelijks leven van burgers.\",\n  \"nl_key_points\": [\n    \"Eerste korte punt in het Nederlands betreffende de belangrijkste geïntroduceerde oplossingen of wijzigingen.\",\n    \"Tweede korte punt in het Nederlands...\"\n  ],\n  \"pt_ai_title\": \"Um novo título curto para o ato jurídico em português, capturando a essência das mudanças (por exemplo, máx. 10-12 palavras).\",\n  \"pt_summary\": \"Resumo de 2-3 frases do ato jurídico em português, na perspetiva do seu impacto na vida quotidiana dos cidadãos.\",\n  \"pt_key_points\": [\n    \"Primeiro ponto curto em português sobre as soluções ou alterações mais importantes introduzidas.\",\n    \"Segundo ponto curto em português...\"\n  ],\n  \"category\": [\"Categorize the document into one category by default, based on the field it primarily concerns. Choose up to 3 if the document also touches upon SIGNIFICANT issues from other categories. You MUST select categories ONLY from the following list: Health, Education, Family, Taxes, Labor, Security, Environment, Courts and Law, Transport, Benefits, Real Estate, Media and Culture, Local Government, Migration, Agriculture, Public Investments, Informatization, Economy. If the document does not definitively fit any of these, you MUST use \"Other\". If you use \"Other\", it should be the ONLY category selected. Do NOT invent new categories. The response must be an array of strings, e.g., [\"Taxes\", \"Family\"].\"]\n}\n\n",
      "ai_response_raw": "{\n  \"pl_ai_title\": \"Ustanowienie 7 listopada Dniem Świadomości Zespołu Shwachmana-Diamonda\",\n  \"pl_summary\": \"Rezolucja wyznacza coroczny dzień poświęcony rzadkiej chorobie genetycznej, aby zwiększyć wiedzę społeczeństwa i lekarzy. Ma to pomóc w szybszym diagnozowaniu pacjentów oraz wspierać badania nad nowymi metodami leczenia.\",\n  \"pl_key_points\": [\n    \"Ustanowienie 7 listopada oficjalnym dniem świadomości o zespole SDS.\",\n    \"Zwiększenie wysiłków na rzecz wczesnego wykrywania choroby u noworodków i dzieci.\",\n    \"Promowanie badań naukowych nad skutecznymi terapiami i poprawą jakości życia chorych.\"\n  ],\n  \"eng_ai_title\": \"Designating November 7 as Shwachman Diamond Syndrome Awareness Day\",\n  \"eng_summary\": \"This resolution establishes an annual day to raise public awareness about a rare genetic disorder affecting bone marrow and the pancreas. It aims to improve diagnosis rates and encourage more research into treatments for the condition.\",\n  \"eng_key_points\": [\n    \"Designates November 7th as a national day to focus on Shwachman-Diamond Syndrome (SDS).\",\n    \"Aims to help doctors and families recognize symptoms earlier to improve patient care.\",\n    \"Encourages more funding and initiatives for medical research into this rare disease.\"\n  ],\n  \"de_ai_title\": \"Festlegung des 7. November als Shwachman-Diamond-Syndrom-Aufklärungstag\",\n  \"de_summary\": \"Diese Resolution führt einen jährlichen Gedenktag für eine seltene Erbkrankheit ein, um das öffentliche Bewusstsein zu schärfen. Ziel ist es, die Diagnose zu verbessern und die Forschung für bessere Behandlungsmöglichkeiten voranzutreiben.\",\n  \"de_key_points\": [\n    \"Der 7. November wird zum offiziellen Tag für das Shwachman-Diamond-Syndrom (SDS) erklärt.\",\n    \"Förderung der Früherkennung, um die Lebensqualität der betroffenen Kinder zu steigern.\",\n    \"Unterstützung nationaler und lokaler Forschungsinitiativen zur Bekämpfung der Krankheit.\"\n  ],\n  \"fr_ai_title\": \"Désignation du 7 novembre comme Journée de sensibilisation au syndrome de Shwachman-Diamond\",\n  \"fr_summary\": \"Cette résolution établit une journée annuelle pour sensibiliser le public à une maladie génétique rare touchant la moelle osseuse et le pancréas. Elle vise à favoriser un diagnostic précoce et à soutenir la recherche médicale.\",\n  \"fr_key_points\": [\n    \"Désigne officiellement le 7 novembre comme journée de sensibilisation au syndrome SDS.\",\n    \"Encourage une meilleure compréhension de la maladie pour réduire les erreurs de diagnostic.\",\n    \"Appelle à davantage d'initiatives de recherche pour trouver des traitements efficaces.\"\n  ],\n  \"es_ai_title\": \"Designación del 7 de noviembre como Día de Concienciación sobre el Síndrome de Shwachman-Diamond\",\n  \"es_summary\": \"Esta resolución crea un día anual para informar sobre un trastorno genético raro que afecta la médula ósea y el páncreas. El objetivo es mejorar la detección temprana y fomentar la investigación científica.\",\n  \"es_key_points\": [\n    \"Establece el 7 de noviembre como el día oficial para dar visibilidad al síndrome SDS.\",\n    \"Busca educar a la población y a los médicos para identificar los síntomas a tiempo.\",\n    \"Promueve el apoyo a la investigación para mejorar la esperanza de vida de los pacientes.\"\n  ],\n  \"it_ai_title\": \"Istituzione del 7 novembre come Giornata di sensibilizzazione sulla sindrome di Shwachman-Diamond\",\n  \"it_summary\": \"La risoluzione fissa una giornata annuale per far conoscere una rara malattia genetica che colpisce il midollo osseo e il pancreas. L'iniziativa punta a migliorare le diagnosi e a stimolare la ricerca medica.\",\n  \"it_key_points\": [\n    \"Designazione del 7 novembre come giornata dedicata alla consapevolezza sulla sindrome SDS.\",\n    \"Promozione della diagnosi precoce per garantire cure migliori ai neonati colpiti.\",\n    \"Sostegno a nuove iniziative di ricerca per trovare una cura o terapie più efficaci.\"\n  ],\n  \"nl_ai_title\": \"Aanwijzing van 7 november als Bewustwordingsdag voor het Shwachman-Diamond Syndroom\",\n  \"nl_summary\": \"Deze resolutie stelt een jaarlijkse dag in om de aandacht te vestigen op een zeldzame genetische aandoening. Het doel is om de diagnose te versnellen en meer onderzoek naar behandelingen te stimuleren.\",\n  \"nl_key_points\": [\n    \"7 november wordt de officiële dag voor bewustwording rondom het SDS-syndroom.\",\n    \"Inzet op betere herkenning van symptomen bij jonge kinderen door artsen en ouders.\",\n    \"Aansporing tot meer wetenschappelijk onderzoek op nationaal en lokaal niveau.\"\n  ],\n  \"pt_ai_title\": \"Designação de 7 de novembro como Dia de Consciencialização da Síndrome de Shwachman-Diamond\",\n  \"pt_summary\": \"Esta resolução estabelece um dia anual para aumentar o conhecimento sobre uma doença genética rara que afeta a medula ósea e o pâncreas. O foco é melhorar o diagnóstico e incentivar a investigação científica.\",\n  \"pt_key_points\": [\n    \"Define o dia 7 de novembro como o dia oficial de alerta para a síndrome SDS.\",\n    \"Procura sensibilizar a sociedade para a importância da deteção precoce em bebés.\",\n    \"Promove o apoio a iniciativas de investigação para novos tratamentos e cura.\"\n  ],\n  \"category\": [\"Health\"]\n}"
    }
  ]
}