NMDSO Annual Report

Fiscal Year February 2017-January 2018

 

Vision

Improve the quality of life for those with a neuromuscular or neurological disease.

 

Mission

Provide access to services and support through advocacy and collaborative partnering.

Work to ensure anyone disabled with a neuromuscular or neurological disease has access to day to day needs.

Establish an age appropriate respite care facility.

 

Values

Passionate Commitment, Honesty, Integrity, Excellent Service, Caring and Compassionate Support

 

Executive Summary

 

In 2017, our second year of operation, we ended the year in the black thanks to our supporters. We are very proud to report that we;

 

Ř We participated in a series of disease specific support group meeting

Ř Assisted 4 families in need of long term care solutions by helping them understand basic needs and area facilities that would meet their needs. The final decision was up to the families

Ř Coordinated with State Agencies to provide assistance to 3 families in need of assistance which included a ramps, home care and non medical supplies

Ř Purchased and delivered medical equipment/supplies to 5 people in need and not covered by insurance or the insurance would not cover the cost of the equipment

Ř Hosted 2017 NMDSO Outreach and Educational Summit in August attended by 75 people and have received 75 requests to make this an annual event. We are planning another event in 2018 due to the positive response

Ř Participated in 3 local Community events to promote awareness

Ř Completed a study to determine a course of action to open Jenn’s Respite Care with the goal to open in 2020

Ř Started the research necessary to develop a long term care guide to assist families looking for a new home for their loved one

In 2018-19 we plan to continue and build on our 2017 accomplishments, publish the NMDSO Long Term Care Guide, finalize the Jenn’s Respite Care Facility plans, and raise the money for the respite care facility, and general operations.

 

 

Current NMDSO Board of Directors

Mr. James Evans

Chairperson

Since November 2016

 

Ms. Rochelle Harris, RN

Nursing Advisor

Since February 2016

 

Mr. Peter VanVliet

Public Relations

Since February 2016

 

Mr. Edward Sanderson

Secretary

Since February 2016

 

Rev. Juli Gicker-Anderson

Administrative Advisor

Since August 2017

 

Mr. Jeff Friese

Treasurer

Since April 2017

 

Ms. Julie Mincey

Fundraising

Since 2018

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

ANNUAL FINANCIAL REPORT

(Filed with the State of North Carolina)

 

1. Organization Name: Neuromuscular Disease Support Organization, NMDSO

2. For Fiscal Year Ending: Jan 2018

Section 1. Balance Sheet – Concise Statement of Financial Position

A. Assets and liabilities:

Amount

3. Unrestricted Assets:

                                                                           $ 5461.58

4. Restricted Assets:

                                                                                         0

5. Fixed Assets:

                                                                           $ 3959.00

6. Total Current Assets:

                                                                          $  9420.58

7. Total Current Liabilities:

                                                                                         0

8. Total Net Assets:

                                                                          $ 9420.58

B. Fund balance:

 

9. Unrestricted net assets at beginning of fiscal year:

                                                                        $  9563.83

10. Unrestricted net assets at end of fiscal year:

                                                                        $  9420.58

11. Total Change in unrestricted net assets:

                                                                        $  143.25

Sections 2 and 3: Statement of Activities for Reporting Period

Section 2. Support and revenues:

Amount

12. Government grants and contracts:

                                                                            0

13. §131F-2(18) qualifying organization grants:

                                                                            0

14. §131F-2(5) qualifying bona fide membership fees

                                                                            0

15. Program service revenues not exceeding service or good fair market value:

                                                                            0

16. Program service revenues over and above service or good fair market value:

                                                                            0

17. Corporate or business grants:

                                                               $ 4050.00

18. Contributions designated or received through third party channels (e.g., via

parent group, federated fundraising group):

                                                                             0

19. §131F-2(5) non-qualifying donation-based membership fees:

                                                                             0

20. Fair market value of “in-kind” contributions and forbearances received:

                                                                             0

21. Restricted direct contributions (e.g., endowment giving, charitable gift

annuities, unrealized bequests):

                                                                             0

22. Unrestricted direct contributions:

                                                               $ 7052.06

23. Total G.S. §131F-2(5) “contributions” (add items 16 through 22 and enter

total here):

                                                             $11,102.06

24. Total Support and Revenue (add items 12 through 22 and enter total here):

                                                             $11,102.06

 

 

 


 

Section 3. Functional Expense Statement:

Functional Expenses

(A) TOTAL

(B) Program

Services

(C) Management

and General

(D) Fund raising

25. Grants and allocations

                                    0

 

 

 

26. Specific assistance to individuals

 2542.68

2542.68 

 

 

27. Benefits paid to or from members

                                    0

                                    0

 

 

28. Compensation of officers, directors, etc.

                                   0

 

 

 

29. Other salaries and wages

                                   0

 

 

 

30. Pension plan contributions

                                   0

 

 

 

31. Other employee benefits

                                   0

 

 

 

32. Payroll taxes

                                   0

 

 

 

33. Professional fundraising fees

                                   0

 

 

 

34. Accounting fees

                                   0

 

 

 

35. Legal fees

                                   0

 

 

 

36. Supplies

1155.51

517.77

466.90

170.84

37. Telephone

91.33

30.44

30.44

30.44

38. Postage and shipping

331.35

44.00

67,65

219.70

39. Occupancy

3309.45

1099.17

1105.12

1105.16

40. Equipment rental and maintenance

505.00

151.71

201.59

151.70

41. Printing and publications

1092.33

 

 

1092.33

42. Travel

214.26

214.26

 

 

43. Conferences, conventions and meetings

0

0

0

0

44. Interest, Bank Fees

92.72

0

26.35

66.37

45. Depreciation, depletion, etc.

0

0

0

0

46. Other expenses not covered above

5011.08

1816.93

1977.81

1216.34

Total Expense Amounts:

Total:

Program Services:

Management and General:

Fundraising:

47. TOTAL EXPENSES:

14345.70

6416.96

3875.86

4052.88